The reCOnS Network

This network focuses on improving how outcomes are selected, defined, and measured in lower limb lengthening and deformity correction, with the overarching aim of making research and clinical evaluation more meaningful to patients and more comparable across studies. Using a mixed-methods approach, a patient-centred core outcome framework will be developed, that brings together evidence from the literature with multi-stakeholder input (patients/caregivers and healthcare professionals) through an international Delphi process and structured consensus methods.

Building on completed preparatory work, including a comprehensive review and an international Delphi study, the next phases will include qualitative work with my existing clinical and research network to deepen understanding of what matters most to patients and caregivers across the treatment pathway, followed by development and evaluation of core outcome measurement instruments and a core outcome measurement set. Ultimately, this work aims to strengthen transparency, reduce inconsistency in outcome reporting, and support better decision-making in limb reconstruction research and practice.

Main researcher:

Ali Yalcinkaya, Søren Kold

Co-researchers from the group:

Ole Rahbek, Lili Worre Høpfner Jensen

External Co-researchers:

Christopher Iobst, Michael Skovdal Rathleff